Amani Liaquat was given the devastating news in April, two weeks after her birthday celebration.
The young woman was diagnosed with an aggressive and inoperable brain tumour and medics told her she has between 12 to 18 months.
Her heartbroken family spoke of the diagnosis and said it has been "the most gruelling time any of us have ever experienced".
The family, from Luton, Bedfordshire have been battling to raise funds for treatment.
And her desperate dad, Khuram Liaquat, jetted out to Germany in the midst of the pandemic to collect three months' worth of a pricey drug that could prolong his daughter's life.
he drug, known as ONC201, has shown promising results in the same tumour mutation as Amani’s in Phase II trials in the US.
But it costs £4,000 a month and, if effective, will require long-term use.
The cost for a year of this medication, plus medical consultations, stands in the region of £50,000 - far more than Amani's family can afford.
Her parents were left with no choice but to set up a JustGiving page to help them fund the life-prolonging treatment for their daughter.
And, thanks to enormous generosity from family, friends, and well-wishers, the page raised £100,000 in just 24 hours.
Amani was rushed to Luton and Dunstable Hospital on April 29, her 22nd birthday, after collapsing at home.
She spent four days there, before being transferred to the National Hospital for Neurology and Neurosurgery at Queen Square, London, for a biopsy.
She spent a further eight days there, during which time she had numerous scans and exploratory surgery which left her with 15 staples in her head.
Due to Covid restrictions on visiting, she had to deal with all of that and difficult conversations with medical professionals by herself.
Her dad said: "Amani coped amazingly well and was finally discharged on 10 May.
"Two days later, we were given the news that Amani’s tumour was a grade 4 glioblastoma multiforme (GBM) with H3K27 mutation - which was cancerous and inoperable."
The tumour, a diffuse midline glioma, is particularly resistant to conventional treatment, with its location being so deep in the brain that doctors concluded surgery was not an option.
Following a biopsy, Amani began the usual treatment protocol for this tumour type: six weeks of radiotherapy followed by low-dose chemotherapy, which she was due to begin in August.
But within weeks an MRI scan revealed the tumour had already grown, and the chemotherapy was stopped.
Khuram said: "It was utterly devastating to be advised that Amani’s chemo should be stopped but we were even more determined to fight on.
%20(6)_1738229718.jpeg)
Posts
Thank you for reaching out to us. We are happy to receive your opinion and request. If you need advert or sponsored post, We’re excited you’re considering advertising or sponsoring a post on our blog. Your support is what keeps us going. With the current trend, it’s very obvious content marketing is the way to go. Banner advertising and trying to get customers through Google Adwords may get you customers but it has been proven beyond doubt that Content Marketing has more lasting benefits.
We offer majorly two types of advertising:
1. Sponsored Posts: If you are really interested in publishing a sponsored post or a press release, video content, advertorial or any other kind of sponsored post, then you are at the right place.
WHAT KIND OF SPONSORED POSTS DO WE ACCEPT?
Generally, a sponsored post can be any of the following:
Press release
Advertorial
Video content
Article
Interview
This kind of post is usually written to promote you or your business. However, we do prefer posts that naturally flow with the site’s general content. This means we can also promote artists, songs, cosmetic products and things that you love of all products or services.
DURATION & BONUSES
Every sponsored article will remain live on the site as long as this website exists. The duration is indefinite! Again, we will share your post on our social media channels and our email subscribers too will get to read your article. You’re exposing your article to our: Twitter followers, Facebook fans and other social networks.
We will also try as much as possible to optimize your post for search engines as well.
Submission of Materials : Sponsored post should be well written in English language and all materials must be delivered via electronic medium. All sponsored posts must be delivered via electronic version, either on disk or e-mail on Microsoft Word unless otherwise noted.
PRICING
The price largely depends on if you’re writing the content or we’re to do that. But if your are writing the content, it is $60 per article.
2. Banner Advertising: We also offer banner advertising in various sizes and of course, our prices are flexible. you may choose to for the weekly rate or simply buy your desired number of impressions.
Technical Details And Pricing
Banner Size 300 X 250 pixels : Appears on the home page and below all pages on the site.
Banner Size 728 X 90 pixels: Appears on the top right Corner of the homepage and all pages on the site.
Large rectangle Banner Size (336x280) : Appears on the home page and below all pages on the site.
Small square (200x200) : Appears on the right side of the home page and all pages on the site.
Half page (300x600) : Appears on the right side of the home page and all pages on the site.
Portrait (300x1050) : Appears on the right side of the home page and all pages on the site.
Billboard (970x250) : Appears on the home page.
Submission of Materials : Banner ads can be in jpeg, jpg and gif format. All materials must be deliverd via electronic medium. All ads must be delivered via electronic version, either on disk or e-mail in the ordered pixel dimensions unless otherwise noted.
For advertising offers, send an email with your name,company, website, country and advert or sponsored post you want to appear on our website to advert @ alexa. ng
Normally, we should respond within 48 hours.